Where people need support
Each person living with a long term condition is on a personal journey – it starts with the diagnosis and then goes through a series of key stages:
Impact of self management
- By this point someone’s life and ability to manage may already have been seriously affected by symptoms.
- People feel challenged about their place in the world and the reality of their situation.
- Helps people come to terms with diagnosis.
- Key to helping people reconnect with themselves and others.
- Helps people make better decisions about treatment options.
- People need information and skills to maintain optimum wellbeing.
- Serious risk of social exclusion.
- Supports people to navigate an often difficult journey.
- Challenges social exclusion by helping build bridges back into society and social roles.
- Cycle of illness and wellbeing arising from luctuations iin condition.
- Increasing severity of symptoms.
- Struggle to get addition support during flare-ups.
- Possible loss of capacity.
- Helps to avoid (or minimse the extent of) flare-ups.
- Enables people to recognise early warning signs and react effectively.
- Tackles pyschological impact of flare-ups or progression.
- Supports changing needs.
- Moving between services, sometimes to different levels/types of support.
- Dealing with multiple needs/conditions and therefore a range of services.
- Often a stressful time and this can have serious impact, including on a preson’s condition.
- Supports person to manage transition processes.
- Maintains focus on person’s needs ensuring services are organised around these.
- Provides person with control at a time when this can be undermined.
- Difficult time involving complex challenges.
- Death may be premature.
- Person may have to cope with symptoms of condition alongside additional challenges of end of life.
- Supports person to meet range of challenges and maintain control.
- Addresses broader needs e.g. emotional, family and lifestyle.
It is important that: